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BETA THALASSEMIA IMPORTANT RESOURCES FOR PATIENTS Information Organized Geographically Banglore Delhi Hyderabad Mumbai Kolkata Ahmedabad KEEPING A POSITIVE ATTITUDE AND A HEALTHY MIND There may be times when, especially as a patient suffering from Cancer, you feel down and low. You may feel angry, confused, frightened and afraid. You may feel alone or isolated. It is normal for you to have these feelings, and most people at some time or the other, through their treatment have times when they feel miserable. Lots of questions may go through your mind. You may ask "Why me?" Nobody knows why it is that some people get cancer and others do not. However one thing is certain, we are all here to help you through your treatment. There will be difficult and hard times but there are good times as well. Many people find it a great help if they talk about their thoughts and feelings to a close friend, or possibly their brothers, sisters, parents, or the nurses and doctors. You may find it a great help talking to other teenagers who are also going through treatment for cancer or those who have finished treatment and have returned for follow-up appointments. As they are going through or have been through treatment, they will have a good idea of how you feel and what you are going through. Talk to the nurses and doctors about your worries. They will be able to explain things more clearly and help you to understand things better and hopefully take away many of the fears you have. Do not be afraid to ask. It does not matter how simple your questions may sound to you, we are all here to help you. Even though you are having treatment it is important that you do not lose contact with your friends. Your friends may find it difficult to understand what you are going through, scared to ask questions about your illness and treatment, and do not know what to say to you. Sometimes it will be up to you to speak to them first and let them realise that you are the same friend and have not changed. Talking to people nearly always helps. Ask them to carry on visiting, telephoning and writing to you and you must do the same back to them. Although you may spend some time away from school/college/work try to keep up your friendships. Family and friends are important people especially when you’re ill. THINKING ABOUT YOUR FUTURE   Even when your treatment has finished it will still be important for you to take care to look after your health generally. A good well balanced healthy diet and exercise are recommended. It is strongly advised that you NEVER SMOKE as it is extremely bad for your health and can be a contributory factor in developing some types of cancers later on in life. Please advise your friends and family not to smoke.   At some stage you may like to talk to your doctor about the possibility that some of the drugs or treatment you have had may affect your chances of having children in the future. This is certainly not the case for everyone and there are many people who have had treatment for cancers and have healthy children today. Please talk to your doctor about this if you have any worries at all. Do feel free to talk to your doctor if you have any reservations or doubts about your treatment and you health, however trivial they may seem.   If you are a patient suffering from Leukemia or any other form of cancer, and would like support and/or essential information on how to deal better with your ailment, we strongly recommend that you contact JASCAP (Jeet Association for Support to Cancer Patients) at the following address: Jeet Association for Support to Cancer Patients (JASCAP) Akhand Jyoti No. 1, III Floor 8th. Road, Santacruz (East) Mumbai – 400 055, India Phone:       91-22-2618 2771                     91-22-2618 1664 Fax:             91-22-2618 6162                     91-22-2611 6736 E-mail:       jascap@vsnl.com                     bja@vsnl.com